Speakers

Dr Julian Barwell of The Genetic Centre at The Leicester Royal Infirmary will speak during the morning; The Centre has just received funding from Macmillan for setting up groups for patients thinking about cancer prevention and survivorship strategies.

Muditha Samarasinghe from the St. Mark's Hospital FAP Registry will l run a session in the afternoon. She is not sure what the content will be just yet and will let us know later.

Jo Rawlings from the St. Mark's Hospital FAP Registry will give the latest update on The Children’s International Polyposis Trial (CHIP) which uses Celecoxib to stabalize or reduce number of polyps.

Wendy Chorley Derby Hospitals Family Cancer Nurse - Although not giving a talk Wendy will be on hand to help as our unoffical medical advisor.

There will be a change of format this year, to one similar to that we have used at the September Chat Days for the last 4 years with good results.

There will be fewer speakers, but plenty of chat, we have found we all have plenty to contribute. So should you feel like doing your own talk or presentation about your experience, please get in touch with John or Mick.

We already have 38 visitors registered and have facilities for a total of 50. We also welcome medical/genetic personnel with an interest in learning or sharing their knowledge about a rare condition.

The cost will be £2.50 per adult with a maximum charge of £5 per address. Those under 18 are free of charge and this will include a hot buffet lunch and hot and cold drinks throughout the day.

John Roberts and Mick Mason,
January 19th 2012.