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Links
to Genetic Information
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Euro
Genetic Guide
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The EuroGenGuide
contains information about genetic testing, counselling
and research across Europe. The information is intended
as a resource for both patients and their families,
and health professionals alike.
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Jeans
for Genes
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Jeans
for Genes It's fun, it's simple,
it's a great cause! Jeans for Genes is a national appeal
where everyone across the UK is asked to throw out the
usual dress rules, jump into their jeans and donate £1
schools / £2 companies to help children with genetic
disorders. |
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The
National Genetics Education Centre
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The
National Genetics Education and Development Centre
I
have been given details of this new website which looks
interesting. Also they are looking for people who would
like to tell their story in order to help train nurses
about genetics and genetic conditions. |
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The
Polyposis Registry
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Polyposis
Registry One of the first websites
I came across based at St. Mark's
Hospital in London. After reading through the site
a few times I actually found for the first time that things
were beginning to sink in. |
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The
Johns Hopkins Hospital New York
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| The
Johns Hopkins Hospital in New York If
you would like to see a booklet for those with FAP and
make allowances for the differences in provision of medical
services in the USA to the UK this is worth a look. I
actually gave a copy to my genetic centre who were quite
interested. |
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The
Clincal Genetics Society
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The
Clinical Genetics Society This is one of The BSHG
constituent organisations which
provides a diagnostic service and "genetic counselling"
for individuals or families with, or at risk of, conditions
which may have a genetic basis. Genetic disorders can
affect any body system and any age group. The aim of genetic
services is to help those affected by, or at risk of,
a genetic disorder to live and reproduce as normally as
possible |
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GeneWatch
UK
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GeneWatch
UK Is a not-for-profit group that monitors developments
in genetic technologies from a public interest, environmental
protection and animal welfare perspective. GeneWatch
believes people should have a voice in whether or how
these technologies are used and campaigns for safeguards
for people, animals and the environment. They work on
all aspects of genetic technologies - from GM crops and
foods to genetic testing of humans. |
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Genetic
Alliance UK
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Genetic Alliance UK is a national alliance
of patient organisations with a membership
of over 130 charities which support children, families
and individuals affected by genetic disorders. |
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NowGen
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Nowgen
Is
one of six Genetics Knowledge Parks
(GKPs) funded by the Departments of Health and Trade &
Industry that have been established across the UK to ensure
that the outcomes of human genetics research are successfully
applied.
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Macmillan
Cancer Support
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Macmillan
Cancer Support A new booklet 'Understanding
Cancer Genetics' is free of charge for cancer patients
and their relatives. |
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Discovery
Health
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Discovery
Health An unusual place to find FAP information
on this Satellite TV station. |
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Various
articles on Embryo Testing
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The
NewScientist.com
BBC
News
BBC
News 2nd Article
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