| My
thanks go to those who have either written or given
their permission to include these articles. I am sure
that they will help you understand how people cope with
different aspects of the gene. |
Bonnie
Bonnie
came to Swarkestone 2008 with her mum and made such
an impression with her vitallity despite being seriously
ill.
|
Chris
Stewart
An
article from The ilesostomy and Internal Pouch Support
Group Journal
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|
Chris tells how FAP has helped to save her life and
reunite her with her daughter who she gave up for adoption
38 years ago. |
Sue
Brooke
An
article from The ilesostomy and Internal Pouch Support
Group Journal
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Chris's
daughter Sue tells her story of how she was reunited
with her mum.
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|
John
Roberts Derby Evening Telegraph March 14th 2007
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John Roberts considers himself fortunate to have
survived a rare genetic condition which claimed the
lives of both his mother and his son. Doctors then
discovered that he had familial adenomatous polyposis.
Natalie Murphy of The Derby
Evening Telegraph writes an excellent article
on John and his Family which also promotes our Family/Information
Day 2007 at Swarkestone Sailing Club
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|
Ann
and Derek
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| When we first got married
in 1971 everything was fine. We had no idea that there
was an inherited disease in our family. We had two children
and they were quite young (2 or 3 years old) when we
got a letter from St Marks hospital to ask if Derek
would go to be screened for polyps in his large bowel.
Download
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|
Helen
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| Helen Padgett's father,
Terry, died of bowel cancer when she was seven years
old and doctors found the Melton care assistant had
inherited a gene which made her prone to the disease.
Download |
|
Jo
Faulkner
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| It was the moment Jo Faulkner
had always dreaded. 'I'm going to have my bowel removed
just like you,' said her son, Kelcey. Shakily, he reached
out to put his hand on his sister Lyndy's arm - 'And
so is she.' Download |
|
John
Roberts
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| Like most things in my
life, finding out that I had FAP was not straightforward.
There were several hints, via my mother and brother,
but it was not until my son became ill with a statistically
linked illness and I had a second bowel check that it
was confirmed. Download |
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Paul
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|
It was early January 2003, when I received the news
that I had been diagnosed with FAP and that I would
need surgery. After consultations with a surgeon and
a genetic consultant, we agreed that a Total Colectomy
with Ileorectal Anastamosis (IRA) would be the preferred
procedure for me.
Download
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|
If you would like to pass any comments
or indeed offer your own story I will only be too
pleased to receive them.
Special thanks go to The
Leicester Mercury and The
Melton Times Newspapers and The Ileostomy and
Internal Pouch Support Group (The ia) for the
reproduction of their articles.
|
