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I expect most of us hope that there are trials
being held or planned with treatment of our own
particular disease or illness. However with FAP
and the other Bowel Genes it is not just one part
of the body or one condition that affects us.
We are now ready to report on two different trials
which concern polyps in the colon and rectum.
The two trials mentioned concern Curcumin C3
complex and Alfa Capsules, The Omega-3 Polyunsaturated
Fatty Acid Eicosapentaenoic acid (EPA) or EPA
FFA.
John has been in contact with a patient who has
been running a personal trial on Curcumin C3 Complex
for two years. This trial has been run with support
from the NHS and involved support from several
academics. Not an easy thing to do but sometimes
necessary if a patient feels so strongly about
it.
FAP Gene has followed trials on Alfa Capsules
since the company SLA Pharma gave a presentation
at our first Family/Information Day in 2006. Although
only a handful were present it did make us aware
that researchers were looking into at least two
of our problems, polyps in the colon and rectum.
So John has started out on the Curcumin C3 Complex
Route and I have taken the Alfa Capsule Route
plus a 75mg Aspirin which I have taken for several
years. Perhaps we could write a song about that.
Hopes are for a reduction in John's Rectal Polyps
and for myself those in my duodenum and small
bowel. Hopefully we will have comparisons to make
over the coming years.
Mick Mason
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