The family support polyposis
coli eV was founded in 1990 and is recognized as a non
profit organization. We are a self-help group for families
affected by the Familial Adenomatous Polyposis (FAP).
Our objectives are
Arranging contacts between families to share experiences
and exchange information and to discuss problems caused
by the disease.
Provision of information and new findings on the origins,
early detection and treatment of FAP
Advice on social issues, such as issuance of severe
disability cards, applying for cures and remedies
research into the causes and treatment options of FAP
regional groups meet regularly (3 - 4 times a year)
for information sessions and interviews.
the group meeting are experts from various fields (gastroenterologists,
surgeons, human geneticist) present, so that individual
issues relating to the FAP experts can be discussed