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FAP Gene Support Group
Familial Adenomatous Polyposis
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Family Assistance Polyposis Coli EV Germany

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The family support polyposis coli eV was founded in 1990 and is recognized as a non profit organization. We are a self-help group for families affected by the Familial Adenomatous Polyposis (FAP). Our objectives are

Arranging contacts between families to share experiences and exchange information and to discuss problems caused by the disease.

Provision of information and new findings on the origins, early detection and treatment of FAP

Advice on social issues, such as issuance of severe disability cards, applying for cures and remedies

Supporting research into the causes and treatment options of FAP

The regional groups meet regularly (3 - 4 times a year) for information sessions and interviews.

At the group meeting are experts from various fields (gastroenterologists, surgeons, human geneticist) present, so that individual issues relating to the FAP experts can be discussed or forwarded.

 

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