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FAP Gene Support Group
Familial Adenomatous Polyposis
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About The FAP Gene Support Group

John Nickels Fundraiser

John Nickels
Fundraiser

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Mick Mason founder of FAP Gene

Mick Mason
Founder and Secretary

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John Roberts FAP Gene Chairman

John Roberts
Chairman

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The FAP Gene Website was started in 2004 by Mick Mason in Melton Mowbray Leicestershire when he realised there was a need for information on FAP. This information was to be from Uk sources which were reliable, non-medical, up to date and easily understood by patients.

In 2005 Mick was introduced to John Roberts who lived not far away in Derby by Kay Neale at The Polyposis Registry in St Mark's Hospital Harrow North London. Kay already knew John from an earlier Polyposis Newsletter and invited Mick to The Registry to discuss his plans for an eventual Patient Information Day. She was also interested in the amount of information already contained on the website and how useful it was to anyone with an interest in FAP.

The combination proved an instant success with Micks knowledge of Website Design and John's determination to hold an early Information/Family Day in March 2006.

Now in July 2009 FAP Gene have held their 4th Annual Information/Family Day and showed a steady increase in numbers attending. They have also added an Informal Chat Day after receiving a few suggestions for more time to allow chat amongst patients, families and friends.

Several talks have been given at Nottingham University, Coventry University and the Royal Marsden Hospital in London. In June 2008 they were invited to write an article for a medical publication by The Rosa Gallo Foundation in Verona on 'Support for FAP Patients'. The only article in 24 chapters from a non-medical source. This was followed by Mick giving their presentation at The Rosa Gallo Foundations Annual Conference in December 2008.

The website has been Recommended by Cancerbackup as a useful source of information in their booklet 'Cancer Genetics' and also on The National Genetics Education and Developement Centre's website 'Telling Stories'.