The FAP Gene Support Group
(Familial Adenomatous Polyposis)
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FAP Gene Support Group
Updated January 15th 2019
As a lasting tribute to our late Chairman John Roberts (1941-2018) we have been permitted to include the final draft of our Verona Article. This was entitled 'The Role of a Patient Association' and published in the Springer Publication 'Intestinal Polyps and Polyposis' 2008
Facebook Page - The FAP Gene Support Group now has over 500 members
Latest News updated October 26th 2018
Our Founder Mick Mason received a "Champion of Hope Award" at
Genetic Disorders UK Symposium in London March 9th 2018
FAP is an inherited condition which mainly affects the large intestine (also known as the large bowel or colon and rectum). People with FAP develop many polyps (which are like small cherries on stalks) inside their large bowel. There are many different types of polyps but these particular polyps are called adenomas (the "adenomatous" in FAP). An adenoma can in time turn into a cancer which is why it is so important to make sure anyone at risk of inheriting FAP is examined.
FAP is a serious condition unless detected early when it can be treated.
This site does not offer any medical advice. For this you should contact your consultant or GP. Also no details of contacts or E:mail addresses will be made available to any third party.
The FAP Gene Support Group is run totally by volunteers.